IRSF investment positions organization at the forefront of early-stage Rett research as genomic medicine reshapes rare ...
New educational videos raise awareness of Cockayne Syndrome and empower families and clinicians through trusted, ...
UB will will host its annual Rare Disease Day event from 1-5 p.m. on Friday, Feb. 27, in the Jacobs School of Medicine and Biomedical Sciences, 955 Main St., Buffalo.
Add Yahoo as a preferred source to see more of our stories on Google. The rare neurogenetic disorder affects 1 in 15,000 people For the first time, Colin Farrell has opened up his home and talked ...
Even when promising clinical trials exist, and the FDA allows expanded access, rare disease patients like my granddaughter ...
Exclusive: One in four wait at least three years for diagnosis and many face treatment ‘access lottery’, according to report ...
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