MCAS Tip of the Week: Why Going Slower Actually Gets You Better Faster
MCAS Tip of the Week: Why Going Slower Actually Gets You Better Faster
5 months ago
substack.com
MCAS
MCAS
Nov 12, 2020
boeing.com
Things I wish I knew sooner about living with MCAS… It’s more than hives anaphylaxis, and sometimes “normal” labs don’t tell the full story. Learning your triggers, pacing yourself, and finding the right mix of support can make a huge difference. ➡️ What’s something YOU wish you knew sooner about your chronic illness? #MCAS #MastCellActivationSyndrome #ChronicIllnessLife #InvisibleIllness #ChronicIllnessCommunity
0:09
Things I wish I knew sooner about living with MCAS… It’s more than hives anaphylaxis, and sometimes “normal” labs don’t tell the full story. Learning your triggers, pacing yourself, and finding the right mix of support can make a huge difference. ➡️ What’s something YOU wish you knew sooner about your chronic illness? #MCAS #MastCellActivationSyndrome #ChronicIllnessLife #InvisibleIllness #ChronicIllnessCommunity
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Mass education secretary on why MCAS scores dropped and why he still thinks it's a good test
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CBS News
Let’s talk about MCAS — Mast Cell Activation Syndrome. The tests we have? Honestly… not that helpful. Most have low sensitivity — meaning they can miss the diagnosis even when it’s really there. Serum tryptase? Often normal in MCAS. Urine prostaglandins, leukotrienes? Only elevated if you test right after a flare and the sample is handled perfectly. Real-world sensitivity? Likely under 50%. Here’s the key: one of the diagnostic criteria for MCAS is improvement with therapy. So if your symptoms i
0:30
Let’s talk about MCAS — Mast Cell Activation Syndrome. The tests we have? Honestly… not that helpful. Most have low sensitivity — meaning they can miss the diagnosis even when it’s really there. Serum tryptase? Often normal in MCAS. Urine prostaglandins, leukotrienes? Only elevated if you test right after a flare and the sample is handled perfectly. Real-world sensitivity? Likely under 50%. Here’s the key: one of the diagnostic criteria for MCAS is improvement with therapy. So if your symptoms i
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FacebookZachary Spiritos
🌟How to Travel on an Airplane with POTS MCAS EDS, after Cancer (Part 1) (see Part 2, 2 days ago!) 🌟This was the very first time I actually checked the wheelchair assistance box when booking my flight—and I can’t believe it took me this long. I knew I needed it: ☀️ Phoenix in 115° heat 🛫 A long walk to the gate 🔥 Already in a bad POTS flare And honestly? I was nervous. I’ve always told myself, “I can walk to the gate, I don’t really need a wheelchair.” But the truth is: standing in long secur
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🌟How to Travel on an Airplane with POTS MCAS EDS, after Cancer (Part 1) (see Part 2, 2 days ago!) 🌟This was the very first time I actually checked the wheelchair assistance box when booking my flight—and I can’t believe it took me this long. I knew I needed it: ☀️ Phoenix in 115° heat 🛫 A long walk to the gate 🔥 Already in a bad POTS flare And honestly? I was nervous. I’ve always told myself, “I can walk to the gate, I don’t really need a wheelchair.” But the truth is: standing in long secur
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FacebookDr. Christina Hibbert
0:43
Getting your MCAS labs checked can be a frustrating and confusing process. Here are my top tips as a board-certified allergist and MCAS specialist to make sure you get the most accurate results possible. My #1 tip? BYOB - Bring Your Own Bag of Ice. Why? Because keeping your samples cold from the moment they are drawn is CRITICAL for accuracy, and it helps out busy lab techs. A few other things to remember: ✅ Most of your meds are okay to continue (but always double-check with your provider!). ✅
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Dr. Jessica Peatross MD on Instagram: "MCAS flare season, also known as Thanksgiving dinner. Most traditional dishes are stacked with high-histamine, high-sulfite, and high-glutamate ingredients, each one capable of destabilizing mast cells in sensitive individuals. From aged meats and fermented sides to canned broths and food dyes, this isn’t just a holiday meal, it’s a perfect storm for mast cell activation. What’s your number one MCAS food trigger on Thanksgiving? Drop it in the comments 👇"
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